Gluten-free: The cost is worth it for good health
If you ask 8-year-old Kyra Payne of Buffalo what her favorite foods are, she probably won’t be able to narrow it down for you.
“Mac and cheese; and bread; and muffins; and cheese,” she says. “No — cheese sticks!”
Her choices sound pretty well aligned with what other third-graders would eat, but Kyra’s diet is much different than most other children’s. That’s because in November 2010, Kyra — a Type I diabetic — was also diagnosed with Celiac Disease, meaning she can’t process gluten the way most people do, radically changing the way she eats.
Celiac Disease is a digestive illness in which the villi — small hairlike tendrils inside the small intestine —are damaged by the consumption of gluten. This damage causes people with Celiac Disease to suffer varying degrees of digestive symptoms, and may leave some people unable to absorb nutrients from food.
People with Celiac Disease could become malnourished and ill. The symptoms are treated, though, by avoiding gluten altogether. But cutting out gluten isn’t as easy as it sounds.
Gluten is incredibly common, as Kyra’s mother, Jennifer pointed out. It’s found in wheat, barley, rye and possibly oats — which means it’s in most processed foods, too, from pasta to Pop Tarts. Furthermore, it’s often a food additive in other processed items, including ketchup, lunch meats and candies.
“We had to go back to cooking from scratch,” Jennifer said, “which is not a bad thing.”
That was to cut back on Kyra’s risk of accidentally ingesting gluten, which could make her very ill, and also to cut back on costs. Kyra and others with Celiac Disease can eat standard food items, such as fresh fruits and vegetables, most meats and most dairy products.
But other special gluten-free items are necessary to replace flour, baking mixes, pastas, breads or anything that could possibly be contaminated with gluten. To compensate, gluten-free products use substitutes, such as rice flour and other flour mixtures instead of wheat flour.
“The worst part is the cost,” Jennifer said. “The cost — normally the cost is three times what your average food costs.” But it’s worth it, she said.
After just a few weeks on a gluten-free diet, Kyra’s stomach cramps stopped, and managing her diabetes became easier. Her mom says she’s healthier.
Amy Wisdom of Urbana said her daughter Bailee, also a Type I Diabetic with Celiac Disease, has managed the condition for five years now. Bailee, a sophomore at Skyline High School, was diagnosed when she was 9, and at the time there were very few stores in their area selling gluten-free items.
The family had to travel to Springfield or Osage Beach to find groceries to accommodate Bailee’s needs. Grocery shopping became very time-consuming, Amy said, because they would have to travel out of town and because they had to check all the ingredients on everything they bought.
“It’s in stuff that you don’t think of, like hot dogs,” she said. But in the last few years she said local retailers, including Main Street Market in Urbana, have offered more products.
Becky Reynolds, who runs the store with her husband Jim, said they started stocking items in their store because they knew there was a need in the community. Amy had talked to the Reynoldses about it initially.
“Then I started hearing about other people in the area who had a problem,” she said, “so I went specifically to some area residents and asked them what would be some good items to carry.”
“It actually has gone over really well,” Reynolds said. “We stock a variety of things; anything from bread to frozen pizza crust.”
And when the Wisdoms have their pizza night at home, “She has her pizza and we have ours,” Amy said. Often, though, the family will share the same foods together — including gluten-free biscuits, breads and lasagna.
“My husband has become quite the baker,” she said. “When he has time, he really goes to town with baking and I just stand back and let him go.”
Like Jennifer, Amy said her family cooks a lot at home to help manage Bailee’s diet.
“It’s definitely a life-changing deal,” Amy said, “but you can do it if you put your mind to it.”
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